It seems an age since I wrote in this blog, and indeed it is. Why is that?
Maybe it is because I have been feeling better since January. No chemo, results since transplant good, no treatment for a while. It seems odd that I would not write whilst well, but maybe that is because of the therapeutic effect that writing the blog has. Feeling ok, no need to write, too busy. That is silly,of course. About two months ago I started on my ‘maintenance therapy’ – a drug called Thalidomide ( yes the very same one!)
Wow it hit me like a steam train. I won’t go into the details – too gory – but suffice to say I discontinued the drug unilaterally after one month. After a few days I started to feel better again, and now I feel good again. The haemotologist is now trying to get me on ‘Revlamid’ …. the next level of maintenance therapy. He is struggling because I am not ‘sick enough’. Here in Australia drugs are monitored by the ‘Pharmaceutical Benefits Scheme’ which in essence means that very expensive therapies (as this is) have to be ‘justified’. My haemotologist is working very hard at trying to manipulate results to get them to agree to it. I’m sure he will succeed eventually.
The medical system here is very good from my point of view. Brilliant doctors, great hospitals, caring treatments. My cardiologists as well as my haemotologists have been excellent. Yes, I have private medical insurance, but this is inexpensive, and I could get the same attention on the public system – just less of a choice of docs/appointment times. The whole of my Transplant therapy was done in the public system and was excellent. No complaints, it makes me a supporter of ‘socialised medicine’ ……. the kind the US health lobbyists hate. All citizens of civilised countries should have access to high quality, affordable health care.
A while back I made a promise to myself to stop listening to the news, and this was good for a while, but I have lapsed recently – leading to my chagrin and depression meter soaring. Think ……. the Brexit silliness in the UK, the shooting frenzy (again) in the USA, Civil war in South Sudan as well as Syria, the world economy still in the doldrums!! OMG!!
One bright spot – England Rugby is in the ascendency. Now number two in the world after whitewashing Australia here in oz (my adopted country) – England is my birthplace and I have always supported England Rugby – loyalty rules !!
So ….. no more news for me. I fill my days walking my lovely and loving dogs, and listening to spotify and sonos whilst ‘tending house’. We have the beach, woods, open spaces, and sunshine. Perth is a great place to live a laid back life whilst still having ‘all mod cons’.
Do I need anything else?